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About Us
The Circle of Life Center 4 Hope Sickle Cell Disease Foundation (CLC 4 Hope) is a charitable, not-for-profit 501(c) 3 organization registered in the state of Illinois formed to help meet the unmet needs of individuals living with Sickle Cell Disease (SCD)
Our Mission
Is to advocate for equality, adequate and quality of health care, efficient and effective social services and programs for those affected by sickle cell disease conditions. To promote and increase public and health awareness, consciousness and education.
Encouraging individuals to become as knowledgeable about Sickle Cell Disease as they may be about any other serious or chronic disease or disorders. Working with hospitals, medical centers and professionals to connect/link with patient’s for research studies toward new treatments, advances and medicines for Sickle Cell Disease to ultimately find “A Universal Cure”
CLC 4 Hope supports advancements, developments, strategies and current medicines for the betterment of individuals living with sickle cell disease. We work and partner with other organizations, medical professionals and teams for the benefit and successful outcomes for sickle cell disease.
Our Vision
- We envision comprehensive social service and life-enhancing programs to individuals living with SCD and for families caring for adolescents/ individuals with SCD
- We envision hosting community, state and national events to provide awareness, education and advocacy.
- We envision “A Cure” CLC 4 Hope supports initiatives in medical research, strategies and advances to ultimately find an effective “Universal Cure”
Learn The Facts About Sickle Cell Disease
Is There A Cure?
Over the years, doctors have learned a great deal about SCD. They know its causes, how it affects the body, and how to treat many of its complications and as of yet-still has no widely none cure.
Since Sickle Cell Anemia varies from person to person there are treatments to improve anemia in both children and adults. Some people who have SCA have chronic (long-term) pain or fatigue (tiredness).
However, with proper care and treatment, many people can have improved quality of life and reasonable health most of the time. Because of improved treatments and care, people who have Sickle Cell Anemia are now living longer.
Bone Marrow and Stem Cell Transplants are current advances developments used as a possible cure. Gene Therapy and other advances are currently in clinical trials and studies toward possible cures.
How common is Sickle Cell Disease?
SCD affects millions of people worldwide and is most common among people whose ancestors come from Africa; Mediterranean countries such as Greece, Turkey, and Italy; the Arabian Peninsula; India; regions in South Central America, and parts of the Caribbean.
It’s the most common inherited blood disorder in the United States-affecting Americans of different ethnic backgrounds.
The disease is estimated to occur:
Happy People
What They Say
Testimonials
“
There’re a lot of myths about sickle cell disease globally, leading to negative perceptions toward patients. As a result, people with sickle cell often conceal their disease and are reluctant to seek medical care and treatment to avoid facing stigma and discrimination; their physical and mental health can also be affected. CLC 4 Hope’s mission is to provide awareness and education to help aid against these harmful misconceptions.
– Dori
“
Pain from a sickle cell crisis is difficult to describe. But I’ll try and describe it from a teen perspective – it’s like falling off your bike really hard – repeatedly, with that pain searing through your body every second throughout your fall and taking days to recover from. Suffering through one of those episodes is physically, emotionally, and mentally challenging.
– Jayden
“
As an adult living with SCD, I thought one of my biggest challenges as I gracefully aged would be disease management. I was concerned about what my quality of life would look like with having to take medications to manage acute pain. How managing the disease is not only about pain medication; but for me it was also about incorporating a holistic approach. While medical interventions are essential for pain management, integrating a holistic approach can help too. I’ve seen the benefits of caring for myself with both aspects.
– Kinya
“
Asting has done many works for poor people such as helping children of poor families to return school, supplying fresh water for thousands of people. Their work is amazing.
- Kevin Martin
“
They have kept thousands of children around the world healthy, educated and safe. They have worked in the hardest-to-reach destinations, which have many people in need.
- Jessica Brown
“
Asting have created a lot of safe spaces for children, poor people and the homeless in emergencies and they help to decline children marriage in asia countries and others.
- David Cooper
“
Asting has done many works for poor people such as helping children of poor families to return school, supplying fresh water for thousands of people. Their work is amazing.
- Kevin Martin
“
They have kept thousands of children around the world healthy, educated and safe. They have worked in the hardest-to-reach destinations, which have many people in need.
- Jessica Brown
“
Asting have created a lot of safe spaces for children, poor people and the homeless in emergencies and they help to decline children marriage in asia countries and others.
- David Cooper
“
Asting has done many works for poor people such as helping children of poor families to return school, supplying fresh water for thousands of people. Their work is amazing.
- Kevin Martin
“
They have kept thousands of children around the world healthy, educated and safe. They have worked in the hardest-to-reach destinations, which have many people in need.
- Jessica Brown
– Dori
– Jayden
– Dottie
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Contact
P.O. Box 1608
South Holland, Illinois 60473-7608